Resources for Trisomy Parents

Websites

http://www.hopefortrisomy13and18.org/

http://www.missinggrace.org/

http://www.facesofloss.com/

http://grieveoutloud.org/pen-pal-program-2/

Free Photography for babies over 25 weeks gestation:

American Child Photographers Childrens Guild: http://www.acpcg.com/projects.htm (this is where we found our photographer Jessica Johnston who we LOVED!!! She is in the Indianapolis area. http://www.jessicajohnstonphotography.com/blog/)

Now I lay Me Down To Sleep: http://www.nowilaymedowntosleep.org/

Free remembrance doll

Molly Bears: https://www.mollybears.com/Home_Page.php

Gemma Bear: http://www.hopefortrisomy13and18.org/index.php option=com_content&task=view&id=19&Itemid=31

Payton’s Birthday Bears for children LIVING with Trisomy 13 or 18: http://www.hopefortrisomy13and18.org/index.php?option=com_content&task=view&id=59&Itemid=39

He was gorgeous and so soft and cuddly ! Thank you to the family who donated Jaxton’s Bear.

NICU Gift box/ Memory Boxes/ Care Package

http://projectsweetpeas.com/RequestAGiftBag.aspx

http://www.abutterflystouch.org/

http://withlovecarepackages.blogspot.com/p/care-package.html

Videos

These aren’t Trisomy videos, but I find the stories inspiring and beautiful. I hope you choose to carry your baby as long as you can and enjoy all the milestones. I pray you get to see and spend time with your sweet baby.

Songs

Safe by Phil Wickham

Down the Road of Bittersweet by Karl Kohlhase

My Wish by Rascal Flatts

Precious Child by Karen Taylor-Good

Story

My child, these tears I cry for you for I am a God of mercy and I lost a child too. For your child did not suffer and my son died in vain. I am a God that is gracious in so many ways. Yes, I took your child, but not because of anything you’ve done.
I gave you the chance to make me an angel, the greatest gift a mother can give to her God. The mothers of my angels are special. That’s why I chose you. But I’ll let you in on a little secret that will bring a smile to your face…

When your child was in heaven before I sent it your way… Your baby was my special angel that I promised a perfect mom so as I sat down and opened the “mommy book” That precious little angel took just one look and said “God I want that one to be my mommy”…

I looked with tears in my eyes and said “Sorry, no can do that mommy she’s not for you.” “why is that?” the little angel asked. I replied “for that mommy her baby will not survive” the little angel looked up at me with tears in his eyes. “But please God, for her… I would die”
For I could tell the angel was sincere despite what I told him, I sent him here.

As a smile crossed my cheek a tear rolled down my face to know of all the mommies in the whole wide world that special little angel chose me.

– Not sure who the author is

2 responses to this post.

  1. Posted by Tammy Vermillion on January 2, 2011 at 9:03 pm

    I am a member of Bridgeway and heard your story this morning. Knowing very little about Trisomy 13, I wanted to read some about it. On my searches I found this website that wasn’t listed here. It is http://www.livingwithtrisomy13.org. I read the stories and all thanked God for their child. I was especially drawn to the stories of the happy children living with trisomy 13. Jaxton has awoken a stagnet spirit in me in my middle age. Thank you for sharing him with us. I am praying for God Sized blessings for you and your family.

    Reply

  2. Posted by Chevy on March 10, 2011 at 6:27 am

    WOW!!! I have had a really rough day. I went to your site to get some encouragment. I realized what i am experiencing isn’t half as bad as what these parents have had to endure. May God be with you all everyday.

    Reply

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