It’s an “Extra Special” Boy!

September 29th – We went to a 3D/4D place to finally find out the gender of our lil nugget of joy. We found out it is a BOY! ☺

But while watching the 4d we also discovered an abnormally large mass extending from the baby’s belly. The technician had never seen anything like it and advised us to show the pictures to our doctor. So we set up an appointment.

September 30th – We have just learned earlier this morning that God made our baby boy “extra” special. In fact it seems that God may have given our precious baby boy an extra chromosome. This means he probably has some sort of Down Syndrome. Along with the extra chromosome the Dr. expressed concern in other areas too: Umbilical Hernia, Abnormal Heart, Spine and Skull development. I am 18 weeks right now.
He may not make it full term, He may be still born, He may live only a short time or he may live a happy extended life. It’s all in God’s good will.
We wish to know and love this precious boy in every way that we can.
Naturally, I am having a tough time dealing with the recent news. The constant thoughts that I am thinking are endless. I know to trust God in all things and He has a plan bigger than I could imagine. It is just a hard time wondering if we’ll ever get to meet our little guy. Wishing to hold him, nurture him with unconditional love and to slobber him with so many hugs and kisses that he tells us to stop!!! ☺

October 4th – We had a follow up appointment today with a counselor and a fetal specialist. The counselor went over the information and told us that the previous diagnosis wasn’t exactly what they saw. They are pretty sure it’s not Down Syndrome (which is actually what we were hoping for given the mortality rate of the other options.)

We got positive and negative news:

Positive- Heart and spine are looking perfectly normal!  Yay!

Negative- Our baby boy probably has Trisomy 13 or 18 which both are fatal, and he has sever brain abnormalities which would result in him not being able to function with out tubes or help even if we was to make it full term. His brain is supposed to have a left and right hemisphere distinctly separated; unfortunately, his is all together in the front. (I guess the back is fine). He in fact does have an umbilical hernia and clinched fists. He also only has 1 out of 2 of the umbilical arteries.

So here we are praying that God works a miracle in the health of our baby.  We are so desperate to have God save our 2nd son and allow him to live a very long and healthy life. We aren’t asking for a free pass or a smooth ride. We know it will be tough. I think we just want to know our baby and love him as much as we do Jake.

I find comfort in knowing that if he did pass in the comfort of my womb that he goes straight to heaven with God and all the other “extra” special babies. And as hard as that is to type with tears filled in my eyes I know it’s true. I know that in the moments when I am crying so hard and I have to remind myself how to breathe that God is in control. This precious life will not go to waste and he has already changed my life.

We are praying with each appointment that we hear more positive news and humbly putting our trust in God.

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13 responses to this post.

  1. Posted by Lucia Metcalf on October 14, 2010 at 3:17 am

    You do not know me but your friend Michelle asked for prayer request and I am honored to do so. As I stand here reading your blog I am so in awe of your total Love for God and your trust in Him. You are such a strong woman. As a mother myself I can only imagine what you are going through. I will pray for you and your baby. God Bless

    Reply

  2. Posted by Jeana on October 24, 2010 at 4:20 pm

    I have tears streaming down my face as I have read your blog Lisa. I know we have not talked in what feels like years, but I do remember that horrible day where you were with me when I found out about my baby who did not survive and I was about to misscarry. Do you remember that day? You were so compassionate and wonderful then to me and reading this and knowing all you are going through, I know our Savior sees your heart, passion and will carry you through this journey. I am inspired by your heart and honestly through your posts. Your blog is wonderful…..

    Know we are praying for you and your beautiful family. I am joining your mom in prayer for complete healing, but mostly that God do his will through your precious baby boy. He is a miracle even at inception.

    Love,
    Jeana Hurst

    Reply

  3. HI! I follow your friend (babybeblessed) on Twitter and found you through her twitter post about your son. My son Aidan had a trisomy 13. It is a hard journey.. one that requires a lot of faith and support of others. I pray God blesses you and guides you and your doctors. If you ever want to talk more my email is jessica.whitmore@gmail.com.

    Reply

  4. Oh My God, it the same like it happened to my dear sister and one of my best friends (they had this same month) … now both of them are very happy with thier 2 kids and husbands …
    I am touched so much .. although we are from diferent cultures but woman’s heart and feelings are the same all over the world .. God gives everyone the cross that she/he can bare …

    I am sure this year will bring you and your family all the happiness and healthy relation .
    Best wishes

    Reply

  5. Iam sorry i forgot to leave my e-mail just in case you do need anyone to talk with …
    sam_yr@yahoo.com

    Reply

  6. Dear Lisa,

    You do not know who I am but your friend Ali Campbell gave me your name. She has been praying for me and asked if I could pray for you. After reading your story and hearing about Jaxton, my family and I will keep you all in our prayers. We have a prayer board in our home and we will add you all to it. We pray not only for God’s healing hand upon Jaxton but a hand of comfort and peace for the rest of you. May you find comfort in knowing that many are lifting you all up to the Father in our petitions.

    Sincerely Serving Him,
    Amy Coats and Family
    Missionaries to Honduras

    Reply

  7. Posted by Nancy McLaughlin on March 1, 2011 at 4:05 pm

    HI:
    I am on staff at College Park Church here in Indianapolis. I was reading a prayer request about your family and went to the blog. Imagine my surprise when you mentioned you were from Glendora, California and attended Pamona First Baptist. We lived in Glendora and attended Grace Baptist for many years before we moved to the midwest. When I was in College, I went to Pomona First Baptist.
    We will certainly pray for your sweet baby and your ministry here in Indy. God is Faithful. He never Fails.
    Nancy

    Reply

  8. Posted by jane on March 7, 2011 at 8:38 pm

    God bless you, and your family.. i read about Jaxton on facebook through a friends posting.. I will pray for you.. God is good, He is kind and is ready to hold you in his arms and comfort you while you go through this part of your life. I have experienced that comfort myself, and pray that you will feel his presence.Have faith,He can do all things!

    Reply

  9. Posted by Katrina on March 7, 2011 at 11:34 pm

    I’m so sorry that your going through this. I know that the saying says that GOD will never put your through something you can’t handle and it is true but how does expect you to handle loosing your son. I believe in GOD and he my wings when I’m down but IDK how I would cope with loosing a child. I have lost a child through a miscarriage and that was hard enough. You will always be in my thoughts and prayers. GOD works in mysterious ways that I KNOW.
    Katrina

    Reply

  10. Posted by kim jenkins on March 8, 2011 at 1:06 am

    Hi,
    You do not know me but a friend by the name of Julie Grimes Denver posted lil Jaxton’s picture on her facebook today and i replied telling her I am sending you and your family prayers and thoguhts for the lil guy. I have children of my own and can only imagine how you feel.. just know that even thought we have never met or even talked I only wish the best for you.. i had tears rolling as i read his story.. I have mentioned this to my mom and dad as well as my grandmother and we will all make sure God knows that even strangers are rooting the lil guy on… best wishes and hugs and prayers are sent to you and your family….

    Reply

  11. Posted by Audrey Sullenbarger on March 12, 2011 at 7:14 pm

    Hello,
    I have been praying for you and Jaxton. I have asked all of my friends to pray:}

    Reply

  12. Posted by Clare on April 6, 2011 at 11:03 pm

    God Bless you and your family. My thoughts and prayers are with you

    Reply

  13. Posted by tatyana on November 10, 2012 at 4:30 pm

    im am crying like a baby right, this video touch my heart.

    Reply

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