Post by Josh – Thursday 5:43 p.m.

Hey everybody, this is Josh (Lisa’s husband).  We want to thank Aimee for endless hours of no sleep to keep everybody updated on Jaxton’s status.  I honestly don’t know what the last update said, so I’m just going to share where we’re at now.

Lisa and I are spending some time with Jaxton.  Right now she has him on her lap and is talking to him.  It’s beautiful.  She just told me, “He moved his leg!”  Movement is something we get excited about.

Jaxton is coming up on 24 hours of life!  This is a huge praise!!  We almost lost him last night.  In fact the doctor has given Jaxton no chance of long term survival.  Yet, he’s still alive.  In fact, we just found out his blood PH is up to 7.227, which is much better than it was this morning!  We get excited for each positive step he takes.  The guy is a fighter!!

It’s been an emotional roller coaster so far of highs and lows.  Jaxton was not breathing when he was born.  He’s been switched between multiple ventilators, but now has one that is helping him keep stable.

For the left-brainers here’s the major medical issues Jaxton has: holoproscencephaly (brain), multiple heart defects, and the omphalocele (some of his intestines are in a sac outside his abdomen wall).  We had a tough decision last night of what to do.  We decided to ask the surgeon to put in a central line.  This is a catheter in his chest that is getting needed medication to his heart.

If you’re reading this THANK YOU SO MUC H FOR YOUR PRAYERS!!  WE CAN REALLY USE THEM NOW!!!!  It will definitely take a miraculous healing from God for Jaxton to live.  We definitely haven’t given up hope!  We also have learned to embrace whatever path God has for Jaxton, as difficult as that is for us.

Here is what you can pray for:

1. His heart defects would miraculously heal.

2. His brain would heal and function at a high level.

3. His blood PH remains at a good level.  7.4 is best.

4. His omphalocele heals quickly and well.

5. That he would begin to move a lot.  He rarely, if ever, moves beyond his tongue.

6. For our whole family during this time and for Jake as friends and family are watching him (thank you Niccum’s and sorry for Jake repeatedly taking off his clothes and diaper!!)

7. That Jaxton does not feel pain or experience much discomfort as he begins to try to move.

Thank you all so much!!!

Here are some pictures from last night that Jessica Johnston took for us: