Woo Hoo Jaxton!!! {Breathing on his own!}

So Jaxton was able to breath on his own today for a whole hour! The doctors thought this was a good step, but when we took the tests afterwards Jaxton seemed to not have the full ability to get rid of the Co2 as needed to function with out the ventilator tube down his throat. His PH level dropped from a constant 7.3 down to 7.16 and it needs to be closer to 7.4. They may repeat the test in a few days to try again. I’m not 100% clear on the next step if he can’t be off the ventilator. I heard a trachea tube, but that would not be for quite a while.

We are still waiting to hear back the official test of the Trisomy 18 (Full, mosiac, partial) and the echocardiogram. But the technician said he didn’t think there was a Coarctation like the Doctors had originally thought. This is GREAT news!

So let’s recap shall we: No Coarctation – Thank you God! / Progress on breathing – Thank you God! / No VSD Heart Defect – Thank you God! / The left side of his heart is more than originally thought effecient – Thank you God!

So I found myself asking God “Why would you make so many things right, but just not one part of the breathing?” Then I felt him ask me “I have done all these things, are you going to trust me with THIS?” So verbally I said to him “Yes, I will trust you with this as well.”

Here are some pictures of Jaxton’s admirers:

One of Jaxton’s Favorite nurses WENDY!



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32 responses to this post.

  1. WOOHOO!!! That is so awesome! Thanks for sharing the video and the information. Our God is an awesome God!

    Reply

  2. Posted by Misty Nickols on March 3, 2011 at 2:53 pm

    God is good! Thanks for sharing.
    Still praying!!

    Reply

  3. Posted by Joni Mote on March 3, 2011 at 2:55 pm

    Lisa! You are so amazing. I can’t even imagine having a sick child and yet you look great and are smiling and praising God every step of the way. I read your friend Aimees blog. Actually I printed it out so I could read it more thouroughly later. She is also so inspiring, not to mention the awesome hair and tattoo!! Praying for all of you!

    Reply

  4. He looks so good breathing on his own. Hopefully he just needs to get a little bigger and stronger so his lungs can handle the release of the CO2 before they can take the vent out. God is great and he has shown you so many miracles with your little man. I will continue to keep you all in my thoughts and prayers.

    Reply

  5. Posted by Debbie on March 3, 2011 at 3:06 pm

    I am so HAPPY to hear how good Jaxton is doing! The video made me cry of joy! God Is AWESOME!! Our prayers are with you still!! Can’t wait to hear more about Jaxton and how well he is doing!! God won’t let you down!! God Bless your little one and your whole family!!

    Reply

  6. Posted by cheryl yost on March 3, 2011 at 3:06 pm

    This is so exciting! I love seeing God at work!

    Reply

  7. Posted by Amanda Suerdieck on March 3, 2011 at 3:09 pm

    Praise God for all the healing and all the healing still to come….He is moving along quickly with his breathing it took our twins 3 weeks to be able to breath on their own without the assistance of some type of machine….God has a mighty plan for Jaxton and we are already seeing it at work….He might be tiny but he has help spread Gods word to the multitudes! May God bless all of you and provide you with everything that you need during this trying time

    Reply

  8. Posted by Lisa Patterson on March 3, 2011 at 3:20 pm

    Overwhelmed by God’s amazing faithfulness and love. Our heart’s celebrate with yours. Go Jaxton! Go God!

    Reply

  9. Posted by Sarah on March 3, 2011 at 3:25 pm

    Thank God for all He is doing for your littlest blessing!! I have been following Jaxton’s story from a link that was posted on baby center. I am in awe of your strength during this time. We have been praying for God’s healing and comfort for all of you, esp. Jaxton. My 2 year old saw the video of Jaxton breathing and kept saying “baby, aww, baby, aww” I am so happy to see all the good posts lately, prayer can do AMAZING things, God is SOOOO GOOD, ALL THE TIME. Praying He will continue to do marvelous things through your little one!! Prayers and Blessings.

    Reply

  10. Lisa, It made my day to see Jaxton’s birthday pic up on here. 😉 Thanks for including me in your blog, it means so much. You and your family have touched me in such an amazing way in such a short period of time. It is such an honor to care for all of you. Lots of prayers, and hugs your way. 😉

    Reply

  11. Posted by lisa beanblossom on March 3, 2011 at 3:26 pm

    I am praying for you. I don’t even know you, but I am a mother and my heart goes out to your family.

    Reply

  12. Posted by Courtney Richard on March 3, 2011 at 3:31 pm

    I have been following this precious baby for a while now and it just touches my heart SO MUCH! What a precious gift the Lord has given you! What a MIGHTY God we serve 🙂 I am so encouraged and challenged by your beautiful family! Thank you, Jesus, for Jaxton. Thank you for this family allowing us all the privilege to watch this miracle as it continues to happen 🙂 Lisa, I don’t know you (outside of reading your blog) but I sure love you!!!

    Reply

  13. Posted by Tom Lindemann on March 3, 2011 at 3:39 pm

    Thats a wonderful song. Helps give a sense of the emotions here. Thanks for sharing that… And continued prayers for you all.

    Reply

  14. I am so so overwhelmed with happiness about Jaxton today – he is amazing doctors and nurses through God’s work – what a blessing! Love the new pictures and video!! I can’t wait to see him keep progressing 🙂
    Still praying! Love and hugs to you all 🙂

    jes

    Reply

  15. Posted by Erica Ramirez on March 3, 2011 at 4:17 pm

    Your story has changed the way I look at God. I lost three of my children and blamed him, why, I asked my self, now I know that he just wanted them to be close to them, this is part of his plan. I am so glad and happy for you that Jaxton is doing so well. He is just one of many of Gods special children, we will pray for you. Thank you for this inspiration.

    Reply

  16. Posted by Cole Chartier on March 3, 2011 at 4:21 pm

    I just burst into tears reading this (thanks to pregnancy hormones lol) you have such an amazing little man who has such a fighting spirit! He is so blessed to have parents with such a strong faith! You, your husband and your children are truly in an inspiration for me!

    Reply

  17. I cried while watching this, thank you for sharing such a wonderful moment with all of us.

    Kara

    Reply

  18. Posted by Anne Willet on March 3, 2011 at 4:57 pm

    Lisa,
    Thanks for sharing that video. I cried once again hearing the song that has such a special meaning for our family also. I can see how much of a fighter Jaxton is, just like his mom and dad. I continue to pray for God’s mercy and strength to enfold all of you as you watch God’s mighty hand of healing at work. Praise and thanksgiving to the Father who has done and is continuing to do so much more than what we can imagine or hope for. Be blessed. Amen

    Reply

  19. Posted by Heather on March 3, 2011 at 5:12 pm

    I’ve been praying for your family and sweet Jaxton. Praise the Lord with all He’s done for your sweet baby!! I pray all the rest of his tests come back with amazing reports.

    Reply

  20. Posted by Melissa Adelsperger on March 3, 2011 at 5:32 pm

    This is wonderful news, Lisa! I’m keeping updates on my Facebook about your family, and there are so many people praying for Jaxton! God is so good!!! You and I met briefly at Wesley church when Josh spoke, but I want you to know that you’re an amazing woman! I taught Josh in school, and I work with your mother-in-law. Our school is lifting all of you up in prayer!! Go,Jaxton!! Whoop! Whoop!

    Reply

  21. Posted by Jen Wallace on March 3, 2011 at 6:13 pm

    Lisa, You don’t know me but I saw your blog on Baby be blessed. I just wanted you to know I’m praying for big miracles for Jaxton. Reading your blog and all that you are facing and have already overcome brought me to tears. As a Mom I can’t imagine what you are going through, may God continue to show Himself mighty! Your faithfulness is an amazing testimony. I will continue to pray!

    Reply

  22. Yay for Jaxton doing so well! I’m glad he is a fighter! I have been checking your blog daily to see how the little man is doing, and my hubby has been asking for updates too! You are touching a lot of lives by sharing your journey and for that I thank you! I will continue to pray for Jaxton and the rest of your family. God is definitely in control!!!

    Reply

  23. Posted by Lauren on March 3, 2011 at 7:29 pm

    This is great! Thinking of you often, and so happy for your little fighter.

    Reply

  24. Posted by Debbie on March 3, 2011 at 7:42 pm

    So precious!

    Reply

  25. Posted by Stacie on March 3, 2011 at 7:59 pm

    Praise God! What fantastic news!

    Reply

  26. Posted by Cathy Griffin on March 3, 2011 at 8:32 pm

    Yay Jax! You are proving our awesome God is so powerful! We pray for you many times each day.

    Reply

  27. Posted by Gwynne on March 3, 2011 at 8:47 pm

    What an amazing video and what an amazing testimony you all are to God’s grace and love. I pray that you all stay strong physically and emotionally. Your little Jaxton is such a miracle. Thank you all for sharing and caring.

    Reply

  28. Watching that video earlier of Jaxton breathing on his own brought me so much joy! God is doin his thang! 🙂

    Reply

  29. Posted by Christa Snyder on March 3, 2011 at 10:23 pm

    Jaxton- you go little fighter! Praying for you every day. You are one beautiful little boy!

    Reply

  30. God is faithful! How amazing! I can’t wait to see what other tricks jaxton has up his sleeve for us!

    Reply

  31. Posted by Melody Hollinger on March 4, 2011 at 10:08 am

    God does still answer prayer! Praying for only good news and that your baby grows stronger everyday! Have a great day and weekend!

    Reply

  32. Posted by Angela Linzay on March 4, 2011 at 5:45 pm

    Ohhhhh I just got all teary eyed and chills up and down my arm!!!! CONGRATS to Jaxton. We serve an AMAZING God! I showed my little Joshua (3 yrs old) pics of Jaxton on your blog and we’ve been praying for him. My heart is SO completely happy for you right now!!!! WE will continue to pray for Jaxton and family.

    Reply

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