I am truly heartbroken and at a loss for words. My heart is certainly aching like never before. Our precious Jaxton is now with Jesus. I don’t have a lot to say as I am still processing my son no longer being here with us. We’d like every one to know how appreciative we are [...]
Posts Tagged ‘semi-lobar holoprosencephaly’
10 Mar
Jaxton Oliver Mark Husmann {rest in peace my best boy}
Posted by Lisa Husmann in Jaxton's Story. Tagged: GOD, Jaxton Husmann, Omphalocoele, semi-lobar holoprosencephaly, Single umbilical artery, Trisomy 13, trisomy 18. 193 Comments
26 Feb
Saturday 4:30am {Pee, Poop & other fun stuff}
Posted by Lisa Husmann in Jaxton's Story. Tagged: GOD, Heart, Jaxton Husmann, NICU, Omphalocoele, semi-lobar holoprosencephaly, Trisomy 13. 68 Comments
Hi! So many things have been going on here!!! Jaxton’s ph level is now 7.32 ideal is 7.4 which is an excellent change from his original 7.02 ph! They adjusted his ventalator and he is handeling the change well according to the respatory therapist. He originally was on 100% oxygen and now he is [...]
13 Oct
20 weeks! …1/2 way there!
Posted by Lisa Husmann in Jaxton's Story. Tagged: blog, Clenched hands, Jaxton Husmann, Josh Husmann, Lisa Husmann, Omphalocoele, semi-lobar holoprosencephaly, Single umbilical artery, Sonogram, Trisomy 13, umbilical hernia. 4 Comments
I consider it a pure joy to have been chosen to carry such a special baby. Dear Jaxton, You made it 20 weeks!!! Great Job Baby! You only have 20 more to go. Hang in there buddy. We are so excited to meet you. Jake has been kissing you through my belly and saying Hi [...]
11 Oct
He shall be called…
Posted by Lisa Husmann in Jaxton's Story. Tagged: blog, Clenched hands, Jaxton Husmann, Josh Husmann, Lisa Husmann, Omphalocoele, semi-lobar holoprosencephaly, Single umbilical artery, Sonogram, Trisomy 13, umbilical hernia. 10 Comments
We have named our son Jaxton! Here is where YOU can help…. what should his middle name be??? We look forward to reading all the suggestions :) Please join us in praying for Jaxton’s Healing! Trisomy 13, Holoprosencephaly, Umbilical Hernia/Omphalocoele, Single Umbilical Artery.
11 Oct
Knit in my womb
Posted by Lisa Husmann in Jaxton's Story. Tagged: Clenched hands, GOD, Josh Husmann, Lisa Husmann, Omphalocoele, semi-lobar holoprosencephaly, Single umbilical artery, symptoms, trisomy, Trisomy 13, umbilical hernia. 5 Comments
October 7th – Compiling all the info I know about our precious Son. Trisomy 13: Trisomy 13 occurs in about 1 out of every 8,000 to 12,000 newborns. Patau syndrome is caused by the presence of an extra copy of chromosome 13, generally present at conception and transmitted to every cell in the body. Most [...]
11 Oct
It’s an “Extra Special” Boy!
Posted by Lisa Husmann in Jaxton's Story. Tagged: 3D, 4D, blog, Clenched hands, Jaxton Husmann, Josh Husmann, Lisa Husmann, Omphalocoele, semi-lobar holoprosencephaly, Single umbilical artery, Sonogram, Trisomy 13, ultrasound, umbilical hernia. 12 Comments
September 29th – We went to a 3D/4D place to finally find out the gender of our lil nugget of joy. We found out it is a BOY! ☺ But while watching the 4d we also discovered an abnormally large mass extending from the baby’s belly. The technician had never seen anything like it and [...]
We are living our story and Counting Our Blessings...
